Introduction
Recovery following major illnesses and/or surgical
procedures can be positively and negatively effected by the role that the
patient and the physician take during the illness and recovery process
(Wallston & Wallston, date unk; Leigh & Reiser date unk).
Organ transplant patients and their physicians use a combination of the
natural healing processes of the body and the technological advances of
medicine to successfully replace diseased organs and replace them with
healthy donor organs. However, unless the transplant recipients have
the option to return to work, their self-esteem and confidence could be
adversely effected. Because an inner sense of stability and security
is more difficult to achieve, people become emotionally attached to symbols,
material goods, or a particular job or social position - all which help
to define who they are. The loss of any of these symbols,, which
have become an important source of meaning in life, can be a terrible blow
(Jaffe, 1980, p.83). Health-care benefits protocols, for organ
transplant recipients, need to be improved to include medical, vocational
rehabilitation, and financial support which incentivize the individual,
benefits underwriter, and employer to return the recipients to work.
Under current social security and many private medical
and financial benefit plans, individuals who are considered well enough
to return to work, may never return to the work place due to the fear of
losing his/her medical and cash benefits (GOA, 1988, p.5). Suggestions
to modify current benefits programs in order to be able to return an organ
transplant recipient to vocational productivity is the topic of this paper.
I will discuss the current benefits protocols, for individuals with long
term disabilities - who have recovered, and contrast the current
programs with opinions to change the benefit protocol, for organ transplant
recipients, in order to facilitate a higher return to work rate for these
disability clients.
The cost of successfully returning organ transplant
recipients to vocational productivity effects the individual transplant
recipient, the taxpayers, employers. By an individual returning to
work, he/she becomes an independent wage earner, who contributes to the
tax and benefits program base, and becomes a productive member of the world
of work and not a recipient of social programs. Employers can benefit
by reducing turnover costs, by employing a good employee, and by taking
advantage of the tax incentives for hiring the disabled.
The current system of private and social financial
and medical benefit programs disincentivize the disabled individual to
return to work. Modifying the existing program to provide for financial
and medical benefits safeguards, will enhance the recovery process of the
transplant individual and have a positive impact on private and social
benefits programs.
Discussion
A rising number of organ transplant recipients are
successfully recovering from the disease that caused the need for an organ
transplant and are ready, willing, and able to return to work. The
many unemployed transplant recipients are hesitant to return to work due
to the potential of losing his/her social security medical and financial
benefits and not having any medical insurance to cover the high cost of
post transplant medical care and medication. The projected post-transplant
medical costs are estimated to be between $12,000. and $15,000. a year
per transplant recipient (Gutkind, 1988, p.343). The current social
security system only allows the individual a limited trial work period
before all financial and medical benefits are discontinued. A number
of private insurance companies do not provide sufficient coverage or incentive
for transplanted individuals to return to work. It is ironic that
federal and state assistance programs, private insurance companies, and
Blue Cross and Blue Shield organizations will invest as much as a half
a million dollars to save the life of a dying person but will provide absolutely
no assistance to help the individual, whose lives they have paid to preserve,
return to the mainstream of productive life (Gutkind, 1988, p.337).
The projected cost of maintaining and individual
on a social and insurance benefits programs, without returning to work,
is costly to the U.S. taxpayers and industry. Returning the individual
to work will save the individual taxpayers and businesses money, by permitting
him/her to earn an income and contribute to the social security and insurance
programs, and still be eligible to receive adequate medical and financial
coverage.
In many cases, the organ transplant recipient may
develop a feeling of lack of self-worth and purpose when he/she begins
to feel well enough to begin working. He/she may find that he/she
is unable to return to work due to a lack of experience for a new job,
if he/she is unable to return to his/her former occupation. It may
also be infeasible to return to work because the new occupation may pay
the worker less than what he/she was receiving from private and social
benefit programs. Economic conditions can also adversely effect the
transplant recipient's ability to find a suitable position. Several
benefits to the organ transplant recipient, by returning to work, is the
feeling of usefulness and productiveness, the sense of independence and
not dependent on subsistence programs, and the acceptance of being "normal"
again after an illness and receiving a "non-conventional" treatment modality.
The role of the vocational rehabilitation professional
is to access, educate, and assist the organ transplant recipient to return
to work. According to a December 1988 GAO report to the Chairman
of the subcommittee on Social Security, in the U.S. House of Representatives,
over 90% of the vocational rehabilitation counselors surveyed said that
more social security beneficiaries would try to work if their Medicare
coverage were continued and their cash benefits were based upon a sliding
scale related to earned income. In many cases, the transplanted individual
is unable to return to the work he/she performed prior to his/her illness
and transplant, but is capable of performing a different occupation that
may have a lesser wage earning potential and/or cash benefit level.
The report to the House of Representatives subcommittee pointed out that
the number of beneficiaries who returned to work could possibly be increased
through some changes in the benefit payment structure (GAO, 1988, p.14).
A sliding cash benefit plan would protect the worker from earning less
than what had been received in cash social security benefits. If
private insurance companies also adopted this point of view, this could
facilitate more organ recipients to return to work thereby reducing benefits
claims costs.
Currently there are more potential recipients than
there are available donors, however, more recipients are surviving the
transplant procedures and are physically, cognitively, and emotionally
capable of returning to work. According to UNOS (1990), in 1989 there
were 8,935 kidney transplants performed, 1,687 heart transplants, 2,188
liver transplants, 416 pancreas, 66 heart/lung transplants, and 92 lung
transplants performed. The survival rates for kidney, heart, and
liver transplants are significant. More than 8 out 10 heart recipients
live more than a year after their transplant. More than 90% of kidney
transplant recipients survive for more than a year (Gorman, 1991; Gutkind,1988).
As of August 1990, there were 17,712 people waiting for kidney transplants,
1,747 people waiting for a heart, 959 people waiting for a liver, 251 waiting
for a heart/lung, 414 people waiting for a pancreas, and 225 people waiting
for a lung transplant (UNOS,1990).
There are a number of employment barriers that effect an individual's
ability to return to work after an organ transplant. Aside from the
potential loss of financial and medical subsistence benefits, the transplant
individual must also overcome employer bias regarding hiring individual's
with perceived disabilities. An individual who has had a transplant
may have some special medical and environmental needs, but this should
not impact the majority of the businesses that have light and sedentary,
inside jobs. Many employers fear the potential loss in production
- due to potential sick time by the employee, inability to perform the
job tasks due to physical restrictions, and the possible increase in health
insurance premiums.
There are several special employment problems that
impact the ability for a disabled individual to return to work, according
to the 1988 GAO study, which reflects the opinion of the surveyed vocational
rehabilitation counselors. The transplant person may also encounter
these issues since he/she is also considered disabled, particularly if
he/she is receiving social security benefits.
1. Smaller companies, which otherwise might be good prospects for hiring transplant recipients, are afraid of the effect on their health insurance premiums.
2. Many health insurance plans specifically exclude preexisting conditions from coverage.
3. Many part-time, temporary, or contractual jobs which the transplant
recipient might qualify do not offer health insurance benefits.
4. The loss of the cash benefits may not benefit the transplant
recipient to return to work.
Sixty-eight percent of the vocational rehabilitation
counselors surveyed in the GAO (1988) study, indicated that social security
disability recipients were less likely to succeed in rehabilitation programs
than other types of clients. They cited that the reason for this
was the lack of financial and medical benefits security if they were to
return to work.
Federal and state government agencies, private insurance
companies, and Blue Cross and Blue Shield organizations need to develop
programs that will invest dollars into providing guaranteed medical, rehabilitation,
and financial benefits to transplant recipients in order to assist them
in returning to maximum productivity. They need to insure medical
benefit protection, provide medical and vocational rehabilitation services,
and protect the financial integrity of working transplant recipients by
providing a protocol for a sliding scale wage/financial protection program.
Employers need to be educated to the value of the transplant recipient
worker in order to enhance the employment prospects for the transplant
recipient. Organ transplant recipients need to be educated about
their medical, rehabilitation, and financial benefits and assessed for
alternative employment prospects that are within their physical, cognitive,
and emotional capabilities.
Current health-care protocols must be changed to
provide more efficient and cost effective health care and rehabilitation
services to return transplanted individuals to work and thereby reduce
on-going benefits cost. Private companies should take the initiative
and not wait for the public programs to be developed and enacted.
According to Susan Dentzer (1991), an effective health-care reform must
be based upon seven key principles. Among them: Business must confront
the real forces that are driving up costs, such as the absence of economic
incentives for truly cost effective health care. Firms must also
become intelligent health care buyers, searching far more diligently for
the best deals around. Companies must accept the job of providing
most of the nation's health insurance in exchange for powerful new tools
to contain health costs. And above all, firms must recognize that
new laws or national policies alone won't get the job done. Just
as companies have coped with global competition by overhauling manufacturing
or switching strategies, effect health-care reforms will mean changing
the way business does business (p. 51).
Conclusion
A reassessment of current private insurance benefit
programs and social security financial and medical benefits rules and regulations
should be initiated to provide the potential employee and employer with
appropriate financial and medical insurance coverage that will protect
the employee and employer from exorbitant post-transplant medical costs
and enhance the return to work potential of the worker.
Organ transplant recipients make good, effective
employees. They do not have any higher work absences than non-disabled
individuals (Gutkind, 1988, p.343). Work is therapeutic physically,
cognitively, and socially for disabled individuals. However, without
the financial and medical benefit coverage assurance, vocational rehabilitation
services, to assist the transplant recipient to return to work, would not
be effective. With guaranteed health-care and financial
support, vocational rehabilitation services can be effective in educating
employers to the benefits of hiring disabled/transplanted individuals.
The benefits to the employer, for retaining an individual who has had an
organ transplant, is that the employer gets back a trained, qualified worker
that does not have the learning curve that a new employee may have.
The company morale can be positively effected by the other employees seeing
that the company does support its workers. The company also gets
back an employee who will probably be very loyal and grateful to the company.
Another benefit of returning the organ transplant recipient to work, as
soon as is medically feasible, is a possible reduction in the company's
short-term and long-term disability insurance rates. Medical and
vocational rehabilitation case management services can be a helpful and
cost effective services to the employer, in coordinating an earlier return
to work of the disabled individual.
According to my clinical experience, employers who
hire individuals who have successfully undergone an organ transplant and
are ready to return to work will benefit by the hiring these individuals.
They will get a loyal employee who will not incur any additional costs
and/or lost work time than non-disabled employees. In many cases,
employees who have been organ transplant recipients, are healthier than
their non-disabled fellow workers due to their regular medical consultations.
Organ transplant recipients are generally more aware of their health care
and practice continuous preventative medical care. They are also
are seen regularly by a physician. New employers are not effected
by the health insurance requirements, associated with the transplant procedure
and post-operative care, since the condition was pre-existing to the employment
of the transplant recipient. Another benefit to the employer may
be the eligibility of Targeted Job Tax Credits (TJTC), which provide economic
incentives for employers to hire disabled workers. Case management
professionals can assist employers and potential employees in qualifying
for this federal program.
Employers who hire or retain employees who have
had an organ transplant do not incur any additional expense for modifying
a job to suit the transplant recipient. Individuals who previously
had jobs that were physically, emotionally, and/or environmentally more
demanding than what the transplant recipient can perform post-transplant,
will need to change jobs, and in some cases employers. However, in
most cases, no modifications to the job site are required to accommodate
and organ transplant recipient.
Providing vocational rehabilitation services to
transplant recipients can assist them in analyzing occupational alternatives
and developing work search techniques. The role of vocational rehabilitation
should be to educate and guide potential employers and employees to the
effectiveness of returning the individual to work.
The possible long-range consequences associated with the improvement
of private insurance programs and the social security benefits programs
are:
1. More transplant recipients will be able to afford to return to work.
2. Employer costs for hiring and training replacement workers will be reduced by the return to work of transplant recipients
3. Medical costs will be better controlled as a result of the medical cost containment procedures put in to place to manage the catastrophic medical care program.
4. Social security costs should be reduced as a result of the organ recipient returning to work and contributing to the Social Security System.
5. More individuals will donate their organs as a result of the increased visibility of the individual who has returned to productive living as a result of another individual's organ donation.
The current private and social financial and medical
benefits programs are antithetical to the concepts of rehabilitation.
The prime purpose of rehabilitation is to help the patient/client achieve
his/her maximum physical, cognitive, and emotional capabilities.
The focal concept of vocational rehabilitation is that work is therapeutic
in returning the disabled/injured worker to maximum productivity (Romano,
1984, p.43).
If the current private and social financial and
medical benefit programs can be ameliorated to improve the coverage for
the organ transplant recipients, more recipients will be able to return
to work and be productive members in the work place. The private
and public benefits programs can save money by returning organ transplant
recipients to work, thereby reducing benefits costs, and by implementing
recommended medical cost containment services.
As the techniques and medication associated with
organ transplantation are improved, more individuals are going to be able
to return to work. Tom Starzl, the dean of American transplanters
voices concern over the impact of the medical advancements in transplantation
science, "The consequences of changing human ecology are well known to
those who have studied the amplifying effects of antibiotics on the population
explosion that is said to threaten the earth or at least the quality of
life of its inhabitants," (Dowie, 1988, p. 242). In order to meet
the needs of these returning to work individuals, medical and financial
benefits programs need to be modified to insure continued coverage and
financial support.
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